Robert Francis (pseudónimo)

Fifteen Years as a Social Worker: Robert Francis

I experienced a happy, normal childhood, which was the best time of my life. I enjoyed playing sports like basketball and football. My dad coached many of my teams, and my mom attended all of my games to cheer me on. I have one older brother who I enjoy a strong bond with to this day.

I was greeted by schizophrenia at age 22. I had just graduated with my bachelor’s of arts degree from SUNY Geneseo in 1993. Following my graduation, I moved back home with my mother. It was at this time that my behavior began to slowly deteriorate. I thought I had a microchip inserted in my brain by the government and that I was being surveilled. As these delusions worsened and intensified, I became very paranoid.

Naquela época, também comecei a ouvir vozes. Eles soaram como gritos dos céus. Eu podia ouvir o presidente Clinton falando comigo. Além disso, achava que as pessoas que via na televisão falavam de mim, diziam onde eu morava e quem eu era. À medida que minha realidade se tornava persistentemente delirante, pensei que o governo estava me observando e que eu estava sendo usado em uma conspiração malévola.

Schizophrenia was never more trying for me than during my first onset of psychosis. Many patients experience anosognosia, which is lack of insight and a common schizophrenia symptom. I also struggled with anosognosia. I knew nothing about schizophrenia and never would have dreamed that a brain disorder was the source of my troubles.

After close to a year of rampant and severe psychosis, I was ultimately brought by my family, via an intervention of sorts, to the hospital. My family would have acted sooner, but they also knew nothing of schizophrenia, even though they did notice my behavior was becoming erratic. It took a while for them to conclude that it was something greater than just quirky or atypical behavior. This was the first of my inpatient admissions.

My first hospital admission was difficult. I was given intramuscular haloperidol, which caused all my muscles to contract (a condition called dystonia). I could not walk and crawled my way down the hallway to find help. The staff gave me Benadryl and the contractions stopped. I was off to a rough start!

After this first admission, I then began outpatient treatment at a community clinic. My psychiatrist started me on olanzapine (Zyprexa). Everyone is different, but for me, Zyprexa was awful. I felt cognitively zoned-out and impoverished, and I was tired all the time. I later came to know the medicinal slang of being “snowed.” And “snowed” I was! Zyprexa induced a lethargy in me, and I felt no motivation other than to watch TV and sleep.

Por causa dos efeitos colaterais e da maneira como me senti, parei de tomar o Zyprexa completamente. Então, eu estava sem remédios. Alguns meses depois, fui novamente levado ao hospital por familiares que perceberam que minha psicose estava voltando.

Initially during my second hospitalization, I was very confused. I would sit for hours just watching the activity in the hospital milieu without saying a word. I was scared and paranoid. But fortunately, during this second hospitalization, my doctor refused to give up on me and was committed to my recovery. He suggested a medication I had never heard of before, clozapine. I was warned that there were many potential side effects, however, we determined I had to try it.

Três dias depois de iniciar a clozapina, senti-me saudável novamente. Todos ao meu redor ficaram maravilhados com meu retorno às faculdades lúcidas e racionais. Muitos dos meus sintomas diminuíram. Voltei para casa me sentindo muito melhor. Clozapina realmente parecia um milagre.

After this second and final hospitalization, I moved on and started attending Continuing Day Treatment (known as CDT). I attended CDT for close to a year (unfortunately, this treatment modality has now been eliminated). CDT gave my day structure and the opportunity to be around others with similar problems. I learned a lot at CDT about the various mental illnesses. It provided me with invaluable psychoeducation.

Finally, after months of stability on clozapine, a social worker at CDT encouraged me to apply to become a peer counselor. She thought I had the capacity to help others.

I eventually became a peer counselor and really enjoyed the job. As a peer counselor, I worked in a hospital providing peer support to patients on the inpatient psychiatric units. I enthusiastically communicated that recovery is possible. I tried to serve as a role model for patients who were struggling.

After six months as a peer counselor, I applied for a full-time job at a group home for people with mental illness and was hired. After one year, I was promoted to assistant manager. Six months later, I was promoted to program manager, and I held this position for three years.

With the desire to further a career in human services, and specifically mental health, I decided to apply for a master’s of social work (MSW) program at a nearby university and was accepted. I attended college full-time for two years and received my MSW in 2006. In 2009, I earned my LCSW (licensed clinical social worker).

I have now been a mental health therapist for close to 15 years. Over the last two years, I have written two books about my life living with schizophrenia, including my most recent book, O Companheiro Essencial da Esquizofrenia. These books have been cathartic for me. Eles me deram a oportunidade de compartilhar minha história com outras pessoas. Escrevo para os esquizofrênicos, suas famílias e os profissionais que os tratam. Se uma pessoa se beneficia de meus esforços, eu alcancei meu objetivo.

I cannot say I do not have ongoing symptoms. I do. But my recovery boils down to this: I have learned to function despite my symptoms. I have capably adapted. It took me a long time to learn to live with schizophrenia, but I have indeed learned, and I continue to refine my coping skills.

Acima de tudo, aprendi aceitação. Aceito suas provocações diárias e não resmungo. Eu sei que posso persistir de forma lucrativa, não importa o desafio que a esquizofrenia possa estender.

A esquizofrenia forjou uma força em mim que eu nunca soube que tinha. E para mim, isso é o que chamo de recuperação.